Wanting to Talk to a Mirror Touch Synesthete

Today is almost a free day. I have book club later, but I don’t have much else to drain me. I always love starting a free day but when I actually get to it, I almost always use it to rest and that’s disappointing. When I’m mostly through and I realize it, I get a sinking feeling. I know I need to adjust my expectations, but I haven’t yet. Anticipation is giving me grief.

I’m still grieving over lost parts of my brain. My librarian hugged me yesterday. I told her that I miss being myself around my sister, Lily. She met my sister once and they began to talk as if they’d known each other for years. I ended up telling her about this process of grief.

My sister Lily is one of those people who can feel your pain, a mirror touch synesthete. Oliver Sacks’ books reported that it’s a real neurological reaction for some people, to literally feel pain when someone describes pain. I don’t wish that on Lily, to feel pain. She just can’t talk about this. She couldn’t talk about when I felt I was dying either. I had been blacking out and having a very high heart rate back then. Every time I tried to sleep, spinning or floating, I felt I might not wake up. I faced mortality in a way I never had before. A lot of people couldn’t talk about it. Now, I’m grieving over losing parts of my brain, one of the most important events of my life along with accepting my death, and I can’t share it with so many people I love because they feel uncomfortable talking about it. Thank God for Nick and Mike, and for four or five other friends who can sit with these thoughts. Thank God for my librarian friend.

I still miss my sister.

Thank you for listening, jules

The Problem with English

Most of the time, when I sit down, I have nothing to say. Today is that day, so I’m going to resort to verbal diarrhea which is what my cognitive therapist calls the drunk talking that I do when I’m too tired to leave her office, a tutoring session, or my friend’s house on a Friday night.

Damn. I’m beyond the verbal diarrhea stage and going into the sitting silently with Airpods in my ears set to any random podcast that I might or might not listen to while I look at Reddit on my phone.

I’ve typed diarrhea twice now and you know what? I want to protest the spelling of that word. Who’s in charge of correcting the words that are totally spelled wrong in the English language? I want to make a complaint. Here’s a list of some of the spellings that annoy me:

  • diarrhea (I have to apologize to those people who visualize as they read. Seriously, I’m sorry about all the verbal diarrhea, word vomit, and just being a big green snot in general.)

  • enough

  • phonics (Really? Who the hell thought of this word as a way to simplify sounding words out for children? Who was that asshole?)

  • through (It’s halfway there thanks to the drive thru crowd.)

  • dough (Look, donut made the transition so dough should follow. In fact, it should have led the way. But, will we confuse our newest readers if it looks like do, did, doing? Maybe dow would do for a downut. Dammit, I can’t get this down.)

  • psychotic, psychic, and psychology

  • sorbet (Maybe we should change it to psorrhbeigh.)

  • straight, light, fight, tight, right, night (I don’t know what we should do with knight, do you?)

  • knife, knock, knit, knowledge, knackered, knot, knob, knees, know (Well, that makes a new problem: what do we do with the duplicates for nit, not, no, and rite for that matter?)

  • when, what, where (Dammit, there are too many complications like were, was, and the potential switch in pronunciation to werewolf. I think I’m done. I’m defeated. Now, I’m staring listlessly at the word done and wondering why it doesn’t rhyme with bone, cone, tone, hone, zone, lone, alone, and phone. Shit, dammit, sack-sucker lug nut.)

I read an explanation once of why we don’t go straight for spelling phonetically because it would become unintelligible to the general reader. Then, the author of this explanation gradually moved to spelling phonetically and by the end of the paragraph, I couldn’t read what he wrote. Okay, I get it, but couldn’t we agree on about ten words a year? Surely, the English speakers could relearn to spell ten nasty words a year, just some of the worst one?

Couldn’t we?

I think I heard an Englishman in the back whisper, “Have we had any luck in London changing the spelling of colour?”

Thank you for listening, jules

The Cloud of Probability

Poor Blitz still isn’t used to having people come into the house, especially after Covid. The pandemic has been good for the cats in the world, except for those homes that have humans who dress up their cats or make them dance for TikTok videos. I was out of the house for a few hours the other day and Mike said that the cats wandered around and cried even though there were still two perfectly good humans to sit down and pet them.

Right now, Blitz is crouched low on the floor next to his puzzle feeder and periodically stopping to look around because my nephew stayed over after a late flight brought him here... Oh, it’s a story all its own, but he left his car parked in our driveway.

But his quiet presence in our house, his laughter and his smile, has sent poor Blitz into the netherparts of our house. Nick said that Blitz is an electron and the house is his cloud of probability.

This morning, I realized that Blitz was probably hungry from hiding. So I filled his puzzle feeder and put it down under my bed, a location of high probability for the electron Blitz. Then, I added a bowl of water. I wish a litterbox would fit under there, but he’ll have to brave the bathroom during a quiet moment.

Don’t worry, Blitz. The intruder will leave sometime after breakfast.

Thanks for listening, jules

Hockey Pucks and Unidentified Wet Lumps

What kind of bullshit can I cheerfully deliver to you today? I’m a jumble-sale of thoughts, not even information: should we talk about the heat wave, the books I’m in love with (The Girl Who Drank the Moon, for one), the reason my hydrangea is lush but isn’t blooming, being gerrymandered into Lake Chelan for the pirmaries, or access to safe abortions? That last ones wouldn’t occur in the chatty side of this blog.

Honestly, I’m happy today, but I’m fatigued and fribbled-fried in my frontal lobe. I can’t think of a thing to grill for dinner, not a damned thing. It’s too hot to go to the grocery store. I want chicken parmesan but I don’t want to heat up the house, stress our minor air-conditioner, cook to an internal temperature of 97 degrees. I wonder if I could make grilled chicken parm work? I’ll bet I could.

If not, it will be one of the vague recipes of a tired mind and my guys will eat it without complaining. I have fed them hockey pucks and unidentifiable wet lumps and they ate them. They even thanked me for my effort.

Thank you for listening, jules

Servant

Sometimes, I forget to sit in my body and feel it all in the morning, aches of arthritis fading with all my stretching and the hope for a blue pill, gory dreams fading (please fade), hunger whispering quietly, my eyes still tender to light. Cat demands begin before I’ve eaten, before coffee, before I’ve relieved my bladder. “Mrawr, mrawr. Rarrrr!”

Why is it that I can’t take care of myself before I take care of them?

I am servant. My needs come second. I am peasant. They are entitled to food. I recall, barely, that I put kibbles into Blitz’s food puzzle sometime between 2:30 and 4:00 am when I got up to pee. Seriously? Yes, that is a memory, not a dream. Then, the little bastard had the temerity to stomp across my legs between 5:00 and 8:00 am. Second breakfast! Rrarwr!

I am reminded that I am servant, aches waiting for morning pharmaceuticals, gut grumbling for toast and coffee, eyes still not wanting summer’s bright light. I am servant. Always servant. Servant first, human second. Are you also servant too?

Thank you for listening, jules

Giving Away My Dog; A Dream

I’ve been having realistic dreams. Last night, I dreamed that I decided to give my dog Teddy away because I was sick and couldn’t care for him. I was anguished over it, but I knew it was the right thing to do.

Months later, I started getting better. I was walking every day plus I wondered how much of a burden I’d given the family with the two small boys, to have to take care of a dog as well, even a wonderful dog like Teddy. I drove up to their house and stopped by. The house was a mess. The boys were loud. Teddy was lying on his bed in the corner of the living room. I just blurted it out to my friend, “I don’t know how bonded you are to Teddy, but I’m better and I want him back in case you’re looking for a way out.” I didn’t want to cry so I made an excuse to go to the vet to check out something in Buddy’s files.

When I got back, Buddy was pulling a rag with the toddler sitting on it. He was laughing like crazy and Teddy, though he was pulling with his teeth, grinned as he pulled the boy around a recliner. The bigger boy ran circles around them. My friend worked in the open kitchen making dinner, something with chicken and garlic. It smelled delicious. Their dad, however, sat stiffly in an upright chair by the dining table.

Before I sat down, he said, “You can’t have him back. I walk him every morning before work and every night before bed. We’ve done all your work while you were sick. I’m glad you’re better now, but you just can’t have him.” Then, he relaxed a little. I noticed that he looked more trim than he had been when I dropped Teddy off. Back then, he had looked dubious and tired and annoyed, and chubby. He held my gaze but he didn’t say anything more. Then, he looked down at his boys who were both piled on top of Teddy. Teddy rolled onto his back and was pretending to wrestle, his mouth open and teeth showing. I’d seen him do the same thing with puppies at the dog park.

It dawned on me that this reluctant man loved my dog. He was the one who walked him at dusk and again in the dark after the boys were in bed. He had watched and probably joined in with his two boys to play with the dog. The yellow rag sat abandoned on the floor, ragged at the edges but still big enough for a boy to sit on. This was a whole family that needed Teddy and he needed them too.

I called him over and held out my hand, “Come here, Baby Dog.” He separated from the pile of boys and came to me, looking back to them. He put his head on my shoulder and I hugged him but when I let go, he went back to the boys and laid down between them. Four little hands buried themselves into his fur.

I looked back at their dad, “You’re right. It’ll be hard to let him go, but I can see he’s happy here.”

My friend, with hot steam curling her hair, said, “You can come visit. Just call ahead next time.” I nodded. Before I could cry, I got up and left.

I woke up and lolled about in my bed for a while. It felt more like a memory than a dream. I think my new meds do that. But…

Do you believe in reincarnation?

Thank you for listening, jules

Finding Joy in a Shrinking Cage

Boy, it’s been quiet in here but I’m here right now, even if it’s just for a moment.

I don’t want to talk about long Covid. I really don’t, but my whole life now revolves around pacing and brain fog. If you had to pick one thing a day to do, groceries, having coffee with a friend, having an argument, doing your part-time tutoring job, getting some exercise, or cooking a meal, how would you choose?

I’ve decided that making meals for my guys is important. I clean the cat litter, but I also choose to read books. Yes, reading has become something that’s harder for me and takes a toll. I still choose reading. I also still choose a few friends. Losing friends has been hard. I find myself telling my physical therapists more than I’d tell a friend over the third drink.

Can you see my brain injury in my writing? I’m going to have to let it show eventually. It’s embarrassing, thoroughly embarrassing. But I can’t organize the way I used to. I hear it when I talk, I don’t make as much sense. I used to do all that without a thought. My subconscious mind was smarter than I was, and the organization just happened. The ends of some stories just reached out and touched their beginnings. Now, I make lists and sometimes have trouble following them. It’s mild, but I feel it. Mike and Nick notice. I wonder if some of my friends notice.

And I really didn’t want to talk about my limitations today. But sometimes, it feels like a cage around me. I can look out and see the rest of the world, running freely, but the wires keep me in. The sad part is that I’m not sure those free people can feel the joy of their freedom. I’m learning to feel what joy I have left, but my cage keeps shrinking as I try to be quiet and stay joyful.

Thank you for listening, jules

Binary Illogic

I don’t have anything to say, especially anything cheerful. Welcome to Monday. I don’t know why I’m here. I need to lie down. I need to close my eyes, except that I just got up.

Family came to visit yesterday and today, I’m tired, so very tired. What is the cost of staying too long? The next day.

Why can’t I think of something else? Every day, I wake up thinking of things to do and every day, I’m reminded that I can pick one thing to do if I haven’t overdone it the day before. Instead of cleaning and shopping for groceries and editing and taking a walk and painting, I can clean or shop or edit or walk or paint.

Shit, I’ve become an OR gate. I used to be an AND gate. You know, binary logic?

Do you know binary logic? An AND gate means that 1+1+1 = 1

Now, I’m 1+1+1 = …

Wait, I got that wrong. Logic is the first thing to go when I’m tired. It makes me rethink trying to edit my book today. I’ve tried to edit other days when I was tired and I made messes, lost work, did and undid and did and undid work.

__________________________________

Okay, I’ve had some rest. It’s three days later, Thursday. How did it get to be Thursday? Now I realize that I’m not

1+1+1+1+1 = 5

but

1+1+1+1+1 = 1.

So, instead of needing to do five things and being able to get five things done, I need to do five things and get one done. I get to choose one. Instead of being math that your kids learned in elementary school, I’m a five input AND gate, sort of, because sometimes I’m

1+1+1+1+1 = 0.

Shit. I’m a five input AND gate with an intermittent connection. What do you call that?

Broken.

Thank you for listening, jules

If Not That, Then This

I’ve been thinking of the things I’ll probably never do.

I may never again get on a plane to go somewhere but it is beautiful right here. Have you looked at the colors of the sky lately? My favorite is the graduating blue just after sunset, pale where the sun just disappeared moving through the values to get to that velvet navy I love to see past the silhouettes of my trees. How can a color be so saturated and seem so transparent at the same time?

I may never be able to care for a dog again. I can’t go for the daily walks. Sometimes, I can’t even go somewhere and sit easily. But the other day, a curly-haired dog wiggled his way up to me on my way to the grocery store, I asked if I could say hi, and I buried my hands deep into his fur and tickled the soft skin underneath. His eyes were wet and brown, and he knew me. He knew me.

My time has been short lately and I feel it now. The next time I mourn what I’ve lost, I’ll remember that I have so much time to read and read and read the books that beckon me.

Thank you for listening, jules

The Hell of Being on Hold

It’s been a day of doctors, doctors who will only meet online, doctors with history who fit us in immediately, doctors who are backed up and leave a person on hold for a half hour and counting. I wish I could make an appointment with the online doctor while I’m on hold for my results with the other.

It’s been twelve days since I had my Covid test and I should have received results by now, but instead, I’m on eternal hold.

I want to talk about being on hold. Don’t they realize that they should leave a person on hold in peace to focus on other things? Don’t they realize that the temperament of the person on hold would be much better if they smoothed out the on-hold situation. It would save their phone staff time and free them from the responsibility of smoothing feathers of the irate on-holdee. The music cycle should last more than three minutes but more than that, there shouldn’t be any abrupt interruptions to get your attention if they’re not yet ready to talk to you. It really is annoying to try to work while you’re listening to the abrupt change on-hold sounds repeatedly grabbing for your attention. The absolute worst is when they use it as a way to advertise to you constantly for the time you’re waiting on the phone.

Yes, I am on the phone waiting for you. I do not need to be advised as to your total gifts to the world in exchange for my undying devotion, AKA, cash. I do not need to know about this feature I have no interest in hearing about. I don’t need more ways to spend my cash. You’ve likely already encouraged me to spend my cash in deeper and more creative ways than I ever thought possible.

Just pay for ten minutes of decent music, will you?

I swear, I think there’s only one person answering this fucking phone for a population of three million. I’m going to die in three years with this awful music still in my ears.

This is no way to write, the annoyance increasing, my mind blanking now and then as to why I’m holding on this call. I just want to know the results of my Covid test that I took twelve days ago. I would guess that it’s negative since the quick-results test was negative, but gees, can’t you just confirm it?

The only reason I’m calling is that my son is having some symptoms that could be Covid. Shit, almost any symptoms could be Covid, there’s such a wide array of them.

What, what is the answer? Yes or no? Yes? Or no?

Still on hold. Still listening to an awful three-minute loop of music. Still getting my thoughts interrupted by the abrupt stop. Yet, at this point, I hold no hope for actually speaking to a human. I’m in limbo, floating in space to another galaxy. Why is there so much space between galaxies?

Thank you for listening, jules

2021 Year in Review

I didn’t get as many Christmas cards this year. I get it. Christmas can be so incredibly busy, and I’ve slipped out of your lives. Buying presents is hard. But this year, I didn’t have as much problem with Christmas as I usually do. I whispered the songs too early and too late. The Christmas ornaments didn’t have to go on perfectly. I wanted to send out the cards. I wanted, I needed to buy some presents for people, to keep them in my mind for a bit.

I’m still not good at buying presents.

I didn’t end up sending out Christmas cards. I usually dislike the idea of writing a year-in-review card. How can I put a whole year of my life onto one page? Oh, I like getting your cards, to think of where you went and what your children and grandchildren are doing. I like to imagine you spiraling in your lovely orbit. I have trouble imagining your sixteen-year-old driving. I remember her on her belly trying to get my kitten to come out from behind the piano. But I like trying to imagine the adult she’s become.

This year, though, I wanted to send out a year in review card, too late for Christmas, too late, even, for New Years. But I’m still not late for thinking about my year last year.

It was interesting. You might not think it could be, but it was interesting.

I didn’t travel. Some days, I can’t get to the grocery store because I need to lie back on the couch. I know. You want to know what it is that causes this. The best my doctors come up with is dysautonomia or post-viral syndrome.

That’s not what I came here to talk about.

See, in 2020, I learned different things. We all did. But in 2021, you all went on vacations again while I stayed home. You started up your yoga classes in person while I tried to figure out how long I could sit at my chair on the deck before the shaking got to be too much for me.

Here’s my year in review:

I found bits of creativity. I wrote poems instead of books because poems take less focus. I drew gift tags instead of pictures. I closed my eyes and imagined the meaning of art in our world. Our culture undervalues art, but we need art. We need to make and see beautiful things. We need the interpretation and the clarity that art gives us. I looked at art. I imagined so much art.

This year, I read books. Big surprise, that. Remember that time when we rushed through a quick coffee and talked about what we would read if we were stuck on a desert island with a crate of books? I have unlimited time to read books from my couch island and the books still pile up around me. There seem to be an infinite number of books that I’d like to read, still.

This year, I contemplated trees, time, and love.

I have so much time, but also so little. There’s infinite time between one second and the next. I wonder if the trees can’t really feel us here because we flutter about them so quickly the way we have trouble seeing the wings of a hummingbird. I’m convinced that my cedars can feel the weight of my house on their toes, like a little girl learning to dance with her father, and that if I lie back long enough, they know I’m with them, even for one of their seconds. They move, but I can’t see it because my time is too quick. For us and trees, the space between time keeps us separated.

I used to travel to find the miracles in the world, a mile-deep canyon, an Irish beer on tap, a rushing river. When I wasn’t 'going somewhere,’ I felt bereft, as if all the miracles were out of reach. On a walk one day, a walk in a place I’d visited a hundred times, I found a tiny miracle, a pale green fungus with a bright red top. I stopped to look more closely at what I’d thought I’d already completely explored. I started taking pictures to find those miracles on those walks. Miracles were out there in nature, I reasoned. They were closer than I’d thought. Buddy, my walking buddy, was patient. Buddy was kind. He didn’t rush me to get to the top. I had plenty of time to try to focus. But early in 2021, Buddy died at only 9, and even my short wandering walks ended. That hurt, not just losing the walks, but losing his quiet presence. What I learned not taking my walks in 2021 is that these miracles exist even in my own house, in my yard, on my deck, and in my imagination. Think of the miracle of falling asleep alone on the couch and waking up with your fingers buried in the plush of a cat on your lap. If you keep your eyes closed for a minute, the beauty of that fur is indescribable. Imagine the potential of a single leaf on a single twig of a tree that’s only six months old. Imagine the places you can go in your imagination, all the way to a cat’s-eye nebula if you want. In 2021, I found miracles are like time. There are an infinite number between one moment on a couch and the next.

And as I looked at the inevitability of death, I saw love. I’ve been extraordinarily lucky to find love and to be allowed to keep it around me for so, so long. Oh, there are a hundred movies that would try to convince you that just one moment of love is all you need. Between one second and the next, love is infinite, that is true. But I’ve been blessed with long and extended love, not just a moment of it. Maybe, you have too and all you have to do is lie on the couch for a year and contemplate it.

Thank you for listening, jules

In My Dreams I Can Fly

I don’t do dreams for you. I don’t know why, but I hate dream sequences in books and movies. They’re cheating. The weirdness of some dreams feels like the character is allowed to take hallucinogens. And it’s simply a false narrative, a red herring, a trick.

But last night, I dreamed I could fly if only I had the right materials and conditions. All I had was cheese, an apple, a harness, line, a field surrounded by trees, and a plane with an engine that had been completely drained of its oil.

Drained.

I love when my dreams involve flying. I used to have a recurring dream that if I moved my arms fast enough, I could fly over the tops of trees, barely. I was a kid in my mother’s house when I first dreamed it. I dreamed it in two houses in New Jersey. I dreamed it here. I always woke up tired but happy after those dreams, elated. I’d think all week about if I could just get above the trees next time, I might be able to see forever. I’d go to bed wishing I could dream it again. It’s months, sometimes years between that dream recurring. I miss it.

I know. I told you I hated dream sequences, but I gave you dreams anyway.

In your dreams, can you fly?

Thank you for listening, jules

Scum on a Still Pond

I know I’d promised to come here more often, but I got to judging my words, doubting they were worth listening to. I get tired. People don’t want to hear about it but I get so fucking tired. Sometimes, my words float and sometimes they sink to the bottom. I hate when I’m boring, but these days, I can be boring, so incredibly boring. I got to worrying that you might not like me when I don’t feel well, that you’d see those boring words disintegrating like stale bread in a fishless pond and stop listening to me.

It’s hard when I feel myself go silent, disappear behind a brain that doesn’t let me finish sentences without some serious focus let alone a whole series of thoughts. I miss my metaphors the most. It can’t be all about pain here. I’m supposed to entertain you, make you think, make you laugh. But pain crumbles my thoughts, gets them wet, floats them away.

Lately, the pain has been more sharp, more than just stone under my ribcage. It leaves me shaking so that I can’t read my own writing if I write by hand and if I type, I type double letters, a visual stutter. But mostly it takes my words away.

That’s what I miss most about my former life, those moments of creativity that used to bubble through me, wearing down stone in order to escape, flowing through everything I did whether I wanted it to or not. Now, I feel the scum on a still pond. Some days, infrequently, I feel a current, a freshness of creativity, but most days, I can’t.

It sucks. This totally sucks. Can anybody hear me? Would this be worth listening to if you could?

Sorry this isn’t chatty. When I sat down, I thought I could be chatty. I’m too tired to move it over to the crabby side.

Thank you for listening anyway, jules

Having a Lovely Ride

In 1969, when the astronaut on the moon leaped up in his cumbersome suit and hopped higher than he expected, that was the first time I tried to imagine living in a different gravity. I thought about it every time my dad popped the accelerator then let it up on one of those mini hills in Southern Indiana. Momentary weightlessness then crunch. I thought about it every time I pressed back in my seat taking off on a flight. I thought about it in the arc of a swing, light, heavy, light, heavy. I loved altering gravity, even for just a moment.

Now, I live in different gravity than I used to, heavier, most of the time. I wonder, if you floated me in water, would I sink?

Mike calls it a singularity at my feet. If it were simple 2G, I would feel heavy, like on a different planet, but I’d get used to it over time. My heavier gravity shifts suddenly, sometimes makes me feel like I’m in a spiral on a rollercoaster, sometimes makes my vision turn red or black or white at the edges.

It might be fun if I had a better attitude.

Do you like that feeling the bed makes when you’ve had too much to drink?

I feel that every night.

Do you like that moment when your clarity is replaced with euphoria and you know you’ll regret this in the morning?

I feel that three or four times a day. Sometimes, I think I must exist in an alternate universe, one in which everyone around me lives in a parallel one, just out of reach, just outside the influence of my crazy singularity, never quite feeling the whirlpool I’m being sucked into. At Wild Waves, I used to love being spit out into that great toilet ride, the one that swirled me around like I was in orbit around the sun and flushed me through when I got to the center hole. I thought I could live in that spiral forever.

If I only loved being drunk, high, or spinning on a Tilt-a-Whirl all the time, I’d be having a lovely ride.

Thank you for listening, jules

Bright and Shining

There’s a guy on Twitter who lost his wife and is writing his grief across the space. Yesterday, I wanted to write to him about Teddy, how he walked on hundreds of hikes with me, how he waited patiently when I took pictures of things, how he barked at just one person, a scary person, on the trail, how he smiled at everyone else, and how I hadn’t been able to make myself walk alone since he died. I miss being outside, but I don’t know how to walk alone. I still talk to my Teddy.

It seemed too close to the heart of grief to write that to a Twitter soul crying out across the space. I cried as I wrote it. But then, I deleted it. I tried again to write about my Grandma, the one who loved me best when I was a child. I tried to write about how I talk to her as I use her plates and imagine her surprise at the taste of mango salsa that I put there with habanero spiking through the soft mango flavor. I still talk to my Grandma.

Some mornings, especially on the weekends, Mike sleeps in. I want to watch him sleep, but that would wake him up. I want him to have his sleep. He needs it. We all need it. But I want so badly to watch him breathe, to see the pink glow across his cheek, to kiss that pink glow. I don’t want to lose him in a moment when I’m not paying attention. I whisper to him across the house as he sleeps. I tell him how much I love him, how I want him to get good rest, how I’ll make him tea when he wakes up.

That is the heart of grief, so close it sits with me while I wait for him to wake up.

I hear people say that it’s a miracle they got to their next anniversary. For me, it’s a miracle that Mike is with me every morning.

I have watched two people die so far in my life, two people I loved. I know grief. I know how much it hurts to lose someone and the pain of those days after they’re gone. It’s excruciating, the crush of loss a real thing that tightens across your chest. I’ve lost more people than that, people I still talk to in certain circumstances, Mike’s mom when I make her boys a particularly good meal, my dad when I use his old screwdriver, Teddy when I find one of his hairs in my pocket, and Grandma when I put food on one of her plates. Sometimes I cry when I’m talking to them. Sometimes the hurt wells up and fills the room.

I want to tell the Twitter man who lost his wife that what he’s feeling is love, bright and shining love.

Thank you for listening, jules

A Balm on a Stormy Sea

If my friends only knew that sending me a picture of their pets now and then would be enough for me to know they were thinking about me, I’d be a happier camper. Early this morning, my symptoms woke me up yet again. I’ve been told I’m not having a heart attack when something under my ribs on the left side quivers and sends shooting pains down my left arm, but my dreams don’t quite understand that yet. I can lie there, breathing slowly in and out, but my mind interprets these symptoms in a way that’s similar to the drop in a roller coaster. So, I wake up in the wee hours and it isn’t a gentle and reassuring way to wake up.

I love when people on Twitter ask for photos of people’s pets. I love them. Once in a while it hurts because someone will look like Teddy or Indy or Angel, but mostly, I feel better looking at the furry little faces that stare so lovingly into the cameras. They are a balm and sometimes I forget for a while that it feels like I’m in the back seat of the car with my Great Aunt Kate who spent most of her time driving on the wrong side of the road, ran all stop signs, and never glided to a stop in her life. She always made for a close-your-eyes-heart-in-your-throat kind of ride and holding my dog in the back seat would have been a comfort.

So, please keep posting those pictures. Don’t fall for the message some serious people send that the Internet is too important for us to be sending out photos of our babies. It’s a critical mission for those of us who need that.

I can hear Seth in the other room interrupting Mike’s work. They’re having a conversation about it.

Thank you for listening, jules

Ridiculous, Horrendous, and Lovely

My life has been one long love story. Even now, as difficult as my life has been for the past year and a half, it is still a love story.

Mike just knows when I’m having a bad day like today, when I can barely make a meal. He just knows. He notices when my hands shake. He catches me crying in the kitchen as I drop something and make mistakes following a recipe. He folds me into his arms and lets me tuck my chin into his shoulder when I don’t have the words to say what used to fly out of my mouth like birdsong. He finishes tasks that I can’t because my chest hurts too much and my heart flutters. He doesn’t push or pull, but lets me flow in whatever direction I need.

Years ago, when Nick was so ill with pneumonia, Mike and I stood in the same kitchen one early morning, changing the watch. I was going to bed and explaining meds. It was his turn to be on call, to watch Nick breathe, to check his oxygen and heartrate, to administer meds. I put both hands on the counter and said, “This is so hard. We just need a break.” Maybe I said fucking break.

It was hard to watch our child struggle to breathe. It was hard to stay up half the night for two or three weeks on end twice a year. It was hard to stay packed for the ER and to be recognized as a frequent flier there. It really was hard.

“There are no breaks,” Mike replied and he lifted just one eyebrow.

I began to laugh and I couldn’t stop. I laughed until my ribs hurt. We laughed with tears in our eyes. It was a most ridiculous moment that we spent together in our little kitchen, a most ridiculous, horrendous, and lovely moment.

We are living that moment still. Together.

Thank you for listening, jules

What Really Happens Following a Recipe

Mike brought a loaf of bread I’d made when he went to see our niece Ruby last Sunday. She’s tired. She’s a single mom. Her son is two. Do you remember taking care of a two-year-old boy? They went out for burgers. They went to the beach. They threw rocks. They ate ice cream. I didn’t get to go because I didn’t feel well enough and Mike didn’t want to have to turn around and come home in the middle of the afternoon if I started feeling worse. I get that. I felt left out, but I get it. So, I sent him with a loaf of bread I’d made when I got too tired the day before as I experimented with making croissants which came out ugly but which Nick promptly ate and said I should make again. I only got to taste one single bite of one and the guys ate the rest of them, ugly or not. Mostly Nick ate them. And the rest of the loaf went toward making cinnamon bread because I got tired before I finished and needed to quit but didn’t want to waste the dough.

Later that day, Ruby texted me that she’d missed me. We got going with a shit-storm of texts but they were the fun kind of texts and not annoying ones. Ruby is funny and warm and completely irreverent. She knows sfuff. She’s experienced stuff. She knows I’ve experienced stuff. She asked for my recipe for the loaf of bread.

‘So, the bread,’ I texted her:

Mix:

  • 2 cups flour

  • 4 tablespoons brown sugar

  • 1 teaspoon salt

  • 2 packages yeast

(I used loose yeast and misread teaspoons for tablespoons, so I added 5 tablespoons yeast but then I dug out a bunch and hopefully ended up with about 2 tablespoons.)

  • 1/4 cup melted butter

(It said softened, but it fucking melted in the microwave. Just make sure it’s not hot enough to kill the yeast. You want it to be the same temperature as a baby’s milk that you tested on your wrist back in the day. Did you ever burn a little red circle into your wrist testing milk for your baby? I did.)

  • 1 cup warm milk

(I was OUT OF MILK! How could I be OUT OF MILK? So, I used a half cup of yoghurt and a half cup of warm water instead. Repeat the temperature stuff because the baby-yeast can’t handle the heat.)

  • 1/2 cup of warm water

(My ancient recipe calls for you to warm all that in a saucepan, but I never do it. But I try not to kill my yeast.)

Gradually add ingredients blah blah blah. Just throw that shit together and knead it in the bowl with enough flour to blend the ingredients and get a dough ball that feels like a baby’s powdered butt. There’s a baby theme here, some kind of metaphor of treating yeast like it’s precious. Add oil to the bowl and turn the dough ball over in it so it doesn’t stick. Cover it with a damp paper towel then let it rest in a warm place for a half an hour, fifteen minutes if you used quickrise yeast. You want it to roughly double in size.

Then, noodle around with butter, the dough, the freezer, and a rolling pin until you’ve used up all but enough dough to make one loaf of bread, maybe half of the remaining dough, maybe a third.

In a microwave-safe bowl, combine:

  • a stick of butter, 1/2 cup?

  • 1/3 cup brown sugar

  • cinnamon (no idea how much I used)

  • a pinch of salt

(If I have big hands, will I use too much salt?)

  • a handful of old chocolate chips

(Who was it that left less than a quarter cup of chocolate chips in this bag under the brown sugar and a bag of dried butter beans at the back of the cabinet? They’re within their expiration date. Does chocolate even expire the same way milk does?)

Microwave it until it’s slightly melted. Taste test. Add a little more cinnamon because you can almost never have too much cinnamon.

Divide the dough into what will roll out on a floured cutting board because it’s too much of a hassle to pull out the pie sheet. Roll it out to about a half inch thick. Smear the gooey sugary stuff onto the rolled-out dough. Roll these two layers like a jelly roll and try to keep all its guts inside while you lift it into a greased loaf pan. Let it rise for thirty minutes, fifteen if you used quickrise yeast. Sprinkle with sugar and cinnamon. I don’t know how much. Cut some diagonal lines into the surface of the bread for decoration. I didn’t realize until well after I baked the loaf that it would have been prettier if I’d sliced the jelly-roll thing into rounds, let them rise, and baked them as actual cinnamon rolls instead of a single loaf.

Don’t preheat your oven. It wastes energy and the gradual increase in the temperature will let the loaf rise a little more so you might not have wet yeast in the center of your bread when you’re done. Save the environment! Bake at 350 degrees until it’s golden brown and sounds hollow when you thump it. I have no idea how long. I set a timer though, so I don’t forget that something was in the oven.

You can roll that dough in cheese, basil, and melted butter if you’d rather.

I also threw a couple of the rolled-out doughs into the freezer because I knew we’d eat too much sweet buttery gooey bread at one time if I didn’t. Label and date that container or you’ll pull it out of the freezer a year from now and have no idea what the pasty-white stuff inside covered with frost heave is and whether or not it’s edible or it’s been in there for three years and you should throw that shit out.

Nobody ever tells you this stuff in recipes or on those cooking shows. They just expect you to know when to throw out those bits of freezer-burned dough and use that chocolate anyway because it still looks okay even though the expiration date is coming soon. They never tell you in cooking classes to use your older ingredients first, within reason. They never tell you how to define reason when it comes to food. They never tell you that throwing out food is contributing to climate change. Save the environment! Eat good food!

Standing on the Shoulders of Corporate Research

I’m up. It’s only 6:14 am. The cat wanted me to get up, so he roamed the house calling out, “Hurow? Hurow?”

I swear he tries to enunciate but he still sounds like Scooby Do.

My sister wanted my lemon meringue recipe. Enough about cats for now. Last Saturday, Mike came home from an Eagle Scout celebration with leftovers from a catering job: fettuccini, garlic bread, and meatballs. Nick was excited to try them, but afterward, he said, “Mom, the fettuccini was good, but not as good as yours.

Oh, the glow. It made me feel lit inside.

I’m not going to quit my job and start a catering truck, but it felt good. I’ve been getting back to enjoying cooking again, mostly. It’s hard, but I’m taking the time to make stuff now and then just to be on my feet for longer and longer every day. The doctor says I should respect my limits but push up against them. Ugh. Enough about my limits.

I have a complicated relationship with giving out recipes. I once gave out my lemon meringue recipe to a coworker who begged for it so he could make it with his daughter, but after he tried it, he popped into my office on a Monday before I’d had a chance to drink my coffee and figure out my strategy for the day. He complained to me that my pie came out bitter. My pie? His pie. They must have zested the hell out of their lemons, I said. I must have left an ingredient out of the recipe, he said. I tried to sound conciliatory when I explained how to zest the lemons, but I was secretly happy it didn’t work, partly because the guy was mad at me because he didn’t know how to zest a lemon. And I wasn’t awake yet. And he accused me of sabotaging time with his daughter. What am I saying? I still feel that same feeling, secretly happy mine was better.

. Why do I have to be this way?

So last week, when my sister posted a picture of her lemon meringue pie, overwhipped and flat, I felt another zing of excitement. Mine was better. But I put on my sweet-sister face and replied that it looked delicious all the while thinking about how it was not shiny, tall, and perfectly toasted like mine usually is. I know it’s evil to think all these mean thoughts, but I swear I was externally kind. What do you do when your brain is mean but you want your sister to feel loved? I lied to her. I told her that it looked delicious. It probably was. I told her that her husband must be happy. He probably was.

Then, she asked for my recipe. I call it my recipe, but first it was Mike’s grandma’s recipe and I adjusted some things. One day, when I asked her to help me with the recipe because Mike said it didn’t taste like his grandma’s, she told me to look on the inside of her pantry door. Was she smiling? She said it was taped onto the wall there with some other recipes. When I finally found it, it was a printed Eagle Brand Condensed Milk recipe. I expected something hand-written. It wasn’t her recipe at all! Mike’s grandma had adjusted some parts. She told me it had evolved. I can’t rightfully claim this is my recipe. I stand on the shoulders of giants, as we all do. And Mike’s grandma stood on the shoulders of corporate research.

It is a good recipe. Thank you, Grandma Rose. Thank you Eagle Brand.

For the crust, I blend:

  • 2 cups flour

  • 1 tsp salt

  • 1/3 cup lard

  • 1/3 cup butter

You can substitute as much as three-quarters of a cup of the flour with wheat flour. Any more than that and the crust falls apart when you put it into the pie pan. You can make substitutions to the lard and butter combination too. Using either all lard or all butter works. Lard makes it flaky. Butter makes it taste good. Half of each is a compromise. These days, I use Mike’s soy-free Earth Balance to protect his heart. That crust isn’t as flaky as lard either. That’s a compromise too but I want to keep him healthy. In any case, my sister knows how to make a pie crust and the rest of you can try it or just buy one at the store.

Blend all this together with a pastry blender until it looks like little pebble shapes and then add:

  • 5 tablespoons of cold water

Toss and gently mix this in and let it sit for a few minutes. Don’t go at it or you’ll have a tough crust. That being said, I never get a crust to fold gently over my rolling pin to lay centered in a pie pan. I blame Mike’s Earth Balance, but that stuff tastes good. It’s probably me though. I fiddle with the crust until it’s patched together and you can’t tell it split in half. I trim about a quarter inch outside the edges of the pie pan. I flute the edges by pushing my left thumb into the outside edge of the crust and pushing/folding it between my thumb and index finger like folding paper between gears on an assembly line. I remember asking my mom how to get that last one to fit in there when she got to the end of the circle and she said you just did. I didn’t get it back then, but I do now. I don’t have a better answer than she did.

This will make two open crusts, one for now and one to freeze for later when you don’t really have time to make a pie but want one. I’m talking about an ordinary-sized pie, eight to nine inches. I freeze them unbaked and wrapped tight.

I bake it at 350 degrees for twenty minutes. Sometimes, I use my pie chain to keep bubbles from forming. Sometimes, I don’t.

While the pie is baking, I start the filling and the meringue:

  • 3 large lemons, zested and juiced

When I say zest, I mean you should use the nutmeg grater on your box shredder. Grate enough to get the shine off the lemon, but not enough that the lemon isn’t yellow anymore. I use organic lemons because your family will eat whatever was sprayed on it and I swear those pesticides are bitter. Try not to grate your knuckles. Don’t combine the juice and the zest yet.

Reserve the bowl for your mixer for the meringue. In another bowl, add:

  • 1 can of Eagle Brand sweetened condensed milk

Blend in most of the lemon and most of the zest. Then, bring the lemon-curd-so-far and a tiny spoon to whoever you love best and let them judge how much more lemony and zesty it needs to be. Be prepared for them to want to eat all of what’s in the bowl. I usually add all of my juice but not quite all of my zest.

Once you finish the taste testing, separate your egg whites from the yolks. You don’t need a special tool. I’ve tried lots of them. All you need is clean hands:

  • 3 large eggs at room temperature

I wanted to tell you to take the eggs out earlier, but I really didn’t want you to add the egg yolks to the lemon curd until after the taste test. No one wants to get salmonella.

Here, you need to work over the bowl for your mixer with the lemon curd bowl next to you along with one more small bowl. Gently crack an egg into your hand and let the egg white drool between your fingers into the bowl. It’s a sensory experience. Roll the egg yolk gently back and forth between your hands until the egg white is drained off of it. Sometimes, I pinch that stringy white thing. I’ve always wondered if that was the umbilical cord. Pinch but don’t pull that cord because it’ll break the yolk. If you just now pulled that little cord anyway and broke your yolk, put it into the lemon curd bowl quickly before yolk gets into your meringue. You don’t want to have to dig around in your egg whites to get out bits of egg yolk. Repeat this three times. For the last two eggs, put the yolks into the third bowl. You only need three egg yolks for the lemon curd. I used to cook up the extra egg yolks without salt for Teddy. Now, I cook them for me with a little sea salt and pepper. I still miss that dog and his enthusiasm. The cats might eat a little cooked yolk, but they might turn up their noses too and that’s sad. Hold off on doing anything with those two egg yolks for now. Timing is getting tighter.

After stirring the egg yolks into the lemon curd, pour it into the pie crust and bake until a toothpick comes out clean, about twenty minutes, still at 350 degrees.

About ten minutes into that time, make the meringue:

  • 1/2 cup sugar

  • 1/8 tsp salt or a tip if anyone knows what a tip of salt is

  • 1/4 tsp cream of tartar

I use more sugar than Mike’s grandma used to use because I wanted my meringue to taste like a marshmallow. (In fact, you can use the egg whites, sugar, salt, and tartar to make your own homemade marshmallows. They’re ugly but they taste good.) Beat this at a low speed until it begins to froth. You can beat it by hand, but I strongly recommend using a copper bowl and even then, you’re going to get a workout. Assuming you’re doing it the easy way, gradually raise the speed to your highest level and watch and listen closely. My KitchenAid begins to whine a little lower when the thickness of the meringue slows it down. If I got distracted in another room, that change in pitch will get my attention. I don’t know if every mixer will do that. Mostly, I look at the shine. It’s going to begin to shine like satin. At that point, turn off the mixer and see if you can pull points up with a spoon. If they sag back into the bowl, mix it on high for a little longer. If you start to lose that satiny shine, stop immediately. When you whip it too long, it makes the texture of the meringue a little grainy.

Timing is important here. You don’t want this fluff to sit around too long.

As soon as the lemon curd comes out of the oven, spoon the meringue onto the hot pie. Resist the urge to spread it around. Your job is to protect the tiny bubbles. Make sure the meringue touches the crust edges all around. Don’t ask me why. It’s what I read in multiple places when I read about making sure the meringue was thoroughly cooked and safe to eat. Mostly, putting the meringue on the hot pie cooks it underneath as the top cooks in the oven. I use the tip of the spoon to draw up little spikes on the surface of the meringue. Usually they curl or fold over and I think it looks pretty.

Bake immediately for about fifteen minutes but watch those little spikes. They should be the color of a perfectly toasted marshmallow, a dark golden brown. When it’s finished, show the pie to that person who tasted the lemon curd. Anticipation makes it taste better.

Refrigerate and serve cold. Here’s a warning though. A lot of the meringue’s height will drop in the cool of the fridge. The pie will fill with a sugary syrup from the loss of that height. In the fridge, put the pie on another deep plate so you don’t have a sticky mess to wipe up in there. If you travel with the pie, place it on a plate or a tray and keep it level. That sticky stuff will never quite come out of your upholstery. Truly, I know.

When you cut into the pie, use a hot wet knife. This keeps the meringue from peeling off the top of your pie and sticking to the knife. Give the first piece to the person you love the best.

I promise that I didn’t leave out any ingredients. No, I am not secretly smiling. When Mike’s grandma got old, she really wanted him to have that recipe. I know how she feels. Now, I want you to have it.

Thank you for listening, jules

The Transformation into the Hoarding Cat Lady

My blood pressure was 86/53 this morning. That’s not even a number. It’s like I made it up or something. Once I stood up, it got to 113/95. That’s normal. I can deal with that. It’s no wonder I’m light-headed when I’m lying down. I’m not getting enough oxygen. I had to go look at what I wrote down to remember what numbers it was. The doctor wants to know. I want to know what my oxygenation was when I was at 86/53. Seriously. Am I getting brain damage? I don’t want to get brain damage. I drank too much in college to be able to afford that.

Am I supposed to be chatty or crabby this morning? I forgot. The cats are yowling at me and pacing. That’s because I got back into the habit of feeding them in the morning. It’s really hard to ignore Seth whenever he asks for food because he’s so skinny. Right now, he’s standing on the bed behind me and rubbing his face on my shoulder.

Yes, I am really cramped at my desk. I don’t have the blood pressure to rearrange things. I’m stuck the way they are. I’m beginning to be like one of those hoarders, not able to take care of myself enough to keep the pile and the cat population from overtaking me.

But Seth is very cute, rubbing his face against my shoulder. I love that, but I can’t concentrate. If he were a predator, I’d be worried about now. He is a predator, but fortunately, he thinks of me as part of his family unit. If those two wanted to take me down, I’d bet they could do it. They worked together to wake me up without me realizing they were waking me up. See, if they piss me off by making too much noise, I refuse to feed them until much later. They’ve learned that I have to think I woke up naturally. I’ve seen them do it with Mike, quietly mewling at his door or putting a paw on the door to bounce it in its frame then casually walking away. He never knows what woke him.

Ergh. This is definitely a crabby. Plus, it’s crap. I’m sitting here, not being able to think clearly because my blood pressure is weirdly low, and I’m writing crap while wondering if anything’s happening on Twitter. I’m addicted to Twitter.

I’m not publishing this shit. It’s shit. I can’t fucking think with this cat staring over my shoulder at the back of my head. Where’s the other one? I can’t see the other one. Why can’t I see the other one?

I just now spun around and leaned forward to see the box at the end of the bed. He was crouched and staring at me. This is why I feed them in the morning. They keep staring at me. They’re all cute until they’re staring at the back of your head while you try to type.

I’m sure this is why I keep waking up before six in the morning. They’re in collusion together to get the good food. Seth, the old one, taught the young one how to stay quiet enough not to piss me off.

By the way, I should tell you that they do, in fact, have food. They always have some kibble in bowls in two different places in the house. They just don’t want that food. That’s the boring food. They want the good stuff that I hide in the cabinet.

Now they’re fighting over the bed. Dudes! It’s a fucking queen-sized bed! There’s room for both of you. There’s a shit-ton of room on the bed. Eight cats would fit on this bed with a generous margin around each cat if they were alternated like cookies on a cookie sheet.

Yesterday, Nick walked into the living room and announced that we should have four cats. Then, he showed me a video with four cats cuddled up together and being very sweet. I would never survive a morning with four cats. If I managed to make it through the yowling-pacing moment or the staring-at-the-back-of-my head moment, I’d die during the fight over the queen-sized bed. I’d be slashed to ribbons. Thoughts and prayers for the hoarding cat lady.

Thank you for listening, jules